Ashleys Updates

On Sept 19th Ashley went in for a spinal tap and chemo the doctors was having problems getting the spinal fluid to come out they tried and ashley was very good through it all the doctors decided to wait 4 weeks and have ashley have another spinal tap Ashley said she wanted to be put to sleep for the next spinal tap we always leave it up to her if she wants to stay awake or go to sleep to get her spinal taps she has done both ashley likes to stay awake because she can have her dad and mom and sister in the room but when she gets put asleep for the spinal tap we can not go into the room. Ashley felt alot of discomfort with this spinal tap we asked her if she wants to stay awake or put asleep next month she said sleep Ashley did get all her chemo that day than we had to return on Oct. 8th for a spinal tap and chemo everything went well with the spinal tap but wasnt feeling well from the medicine they gave her so she could sleep through the spinal tap, Ashley got chemo also. We have one more time Ashley has to get Chemo through her port in her chest we are all so happy Ashley goes Nov. 5th for her last chemo in her port but Ashley does still have to take chemo by pill form for the rest of Nov. on Nov. 28th Ashley will take her last chemo pill at night before bed yaaaaa we are so happy that our little Ashley is almost done with chemo treatment after all the treatment Ashley will have to go back to the doctor every month to be checked to make sure there is no cancer cells she will also have to have other tests to make sure there is no damage to the heart and we would like to Thank everyone for all there prayers and we ask to please continue to pray for our little ashley. ON Oct. 22 Ashleys with is being granted through make a wish Ashleys wish is to go to Disney World so we are leaving on Oct. 22 for Disney world for 7 days yaaaa :) we are so excited Ashley deserves this and much more she has been though to much that no one should have to go through Ashley is a strong little girl we love her so much. Thanks to make a wish and everyone that donates to make a wish, Ashley is getting her wish granted and her dream is coming true to go to Disney World. God Bless everyone we will keep everyone updated. 9/5/2010

Ashley went back to Columbus on 8/13 and had a treatment of chemo everything went well and we had to go back on 8/25 for treatment for Osteoporosis we have to thank the lord the last time ashley had treatment for this she ran a very high fever and high blood pressure and was sick and body ache for a couple of days so we did not know if the body would react the same and this time thank the lord Ashley never got sick and her blood pressure was normal and never ran a fever the side effects she did have was body ache and Ashley was tired for a day. Im sorry we have not updated sooner than this but we want to Thank everyone for there prayers. Yesterday 9/4 Waynesfield motorsports park helped us with holding a toy drive to collect toys to take to Nationwide Childrens Hospital for the kids that have Cancer, we have to give a BIG THANKS to Dean track owner and Gerry track announcer for making this event possible and all the fans and race car drivers for all there support in this event for giving toys to be given to the children with childhood cancer. Ashley did get to attend this event she was so excited to see her daddy and uncle gabe and gabes brother race thanks to dean and gerry they allowed Ashley and myself Ashleys mom to sit and watch in the announcer booth them race and Ashley helped by drawing winning tickets for all the door prizes given from local businesses we all done very well with all the toys we will be taking them personally to Nationwide Childrens hospital on Sept. 13 when we return Ashley has to get a spinal tap and chemo we would like everyone to know this will be Ashleys last spinal tap and after this chemo Ashley will have 2 more treatments on November 28th 2010 Ashley will be done with all treatment except for the Osteoporosis treatment the doctors and us hope and pray Ashley only has to go through a year of those treatments every 3 months we would like to thank everyone for all there prayers we are so thankful for the doctors and all of you and the lord up above that has made her healing possible. After Nov. 28th we will continue to go back for testing to make sure none of the Cancer comes back so please continue to pray for Ashley that no Cancer comes back, they also have to continue checking Ashleys heart that there has not been any damage from the Chemo please please pray that all tests come back fine. Thank you from all of us and Ashley Thanks you for all the prayers. We wanted everyone to know Ashley did start school last week and loves it. We will keep everyone updated. Thank you and God Bless....:)

Ashley went and had her MRI done on July 8th they wanted to put her to sleep to do it but we told her she is a very good little girl and she does not have to be put to sleep she will lay still for it and Ashley did not want to be put to sleep either because she would feel sick when she woke up from the meds. they say most kids dont lay still for it wow they said Ashley is such and awesome patient she never moved an inch and it took a long time also it is really cool what they have. Before the MRI we watched a movie it was neat it was about the MRI but they make it fun its like your going up in a space shuttle and while she is in the MRI you get to wear these goggles and headphones with a microphone on them to watch a movie during the MRI it is so cool what they have invented for these kids to get them through the MRI for the ones that stay awake so Ashley got to pick out of over 100 titles of movies to watch during the MRI. During the MRI they had to give Ashley contrast dye for further images. We were very happy that we got to stay in the MRI room with Ashley the whole time. After it was over Ashley got a special bag that had all kinds of fun stuff in it. We waited very impatiently for the test results and found out there is some scar tissue from the spinal taps and chemo but they did say they were going to keep an eye on it. On July 16th. we went back for Chemo. ever scence 4 weeks ago when they increased all the differant chemo's Ashley has had her days of being sick. We need everyones prayers for our little Ashley. We have 4 more chemo treatments now and 1 more spinal tap and we are counting them down. On Aug. 14th. Waynesfield motorsports park is having a big toy drive for kids with cancer to be donated to Nationwide Childrens in Columbus for the children to have a toy after a procedure for an example a spinal tap. this is the 2nd year the Waynesfiels motorsports park has done this wonderful toy drive for all of our children with cancer. We have to return to Columbus on Aug. 9th for Ashley to get treatment for her bones. This is the treatment she had 3 months ago where ashley had to stay in the hospital over night to keep an eye on her she ended up with a fever from the meds they put in her port. This time she does not have to stay over night but we do have to go home and watch her closely because within a couple of hours after the meds her fever may go up if it goes to high we will have to return to the hospital that night. I know last time she had this her fever went high and her blood pressure went up. We will keep everyone updated. God Bless and please keep the prayers coming Ashley needs all the prayers she can.

Ashley returned to Columbus on Friday June 18th for a spinal tap and chemo after all that she was not feeling well and got sick it was a very long day at the hospital. We are hoping and praying Ashley only has 1 more spinal tap in Sept. and 5 more chemo's in the hospital in the next few months. She also takes pill form of chemo at home every day before bed and a differant chemo on fridays pill form. Ashley should be all done by the 1st of Dec. yaaaa :) Thats a prayer come true. Please everyone say a prayer for little Ashley. July 8th we have to return to the hospital for an MRI because Ashley was having several headaches but she is doing alot better now that she is on Summer break from school but the Doctors want to make sure everything is OK. We will keep everyone updated. Take care and God Bless....

Sorry it took so long to update after Ashleys stay in the hospital for treatment for her bones she continued to have a fever for another day and by Sunday she felt better. On May 14th we had to return to the hospital because Ashley has been having headaches the Doctor wanted to see her we need to keep an eye on Ashley and log it when Ashley has a headache and we had to return the following friday may 21st for Chemo and they were going to send Ashley to an eye doctor to check her vision and to look behing the eye at the nerve to make sure it hasnt swelled everything was OK so now the doctor is sending Ashley to a Neroligist (head ache) doctor here to make sure everything is Ok. When we went to the doctor on the 21st Ashleys blood counts were good but that day she wasnt feeling well. We have to return on June 18th for a spinal tap and chemo in the spine and chemo through Ashleys central line in her chest. We will keep everyone updated. Please keep Ashley in your prayers and God Bless....

We are in Nationwide Childrens Hospital in Columbus we have been here scence 8:30 am Ashley got her Central Line accessed and got her blood counts done. It came back that Ashleys Anc (immune system) is still low from 2 weeks ago the doctors are watching that closely and than from there Ashley got admitted. The doctors there explained everything and they started treatment and gave medicine through her port it took an hour total they have Ashley on a heart and blood pressure monitor and she will continue to be watched over night and into Sat. everything was going well until later on this evening Ashleys body is hurting all over and she has chills they have continued tylenol because her temp will rise through out the night due to the medicine they have explained to us what is going on is the calcium is being drawn from the blood and into the bones from the medicine they gave her through her port they said it is shifting from one to the other so they also have to watch her calcium level because the calcium level can go down in the blood so they are watching her blood counts closely. That is why her bones are hurting when ever she moves and her temp is rising and there is other side effects they are watching closely. They say this could last a couple of days or longer. PLEASE PLEASE PRAY FOR ASHLEY. Thank you and GOD BLESS. We will keep everyone updated...

Went back to Columbus on Tuesday April 20th. Ashley got Chemo and we had to see the bone doctor the bone doctor said its mostly localized in Ashleys back where the bone density is low. The bone doctor said she see's alot of kids with Cancer. On May 7th Ashley has to be admitted into the hospital at Nationwide Childrens where there they have to give her medicine through Ashleys port it takes 30 min. but they have to monitor Ashley for 23 hrs. over night because of the side effects, one thing the doctor did say it does cause a fever and body aches the fever should last a day or two but the body aches can last longer there is also other side effects thats why they need to monitor Ashley closely. Ashley can not take a pill for this because it could take a year or so to take effect and in most cases it does not absorb into the body like it is supposed to and than there is more problems in Cancer patients they need to do IV form to take effect immediatly. On May 7th we will go into the hospital and go to the Cancer Clinic at Nationwide Childrens and than they will access Ashleys port in her chest and they will do alot of blood tests because Ashleys immune system when she went for chemo on 20th was low so the doctors need to keep a close eye on that and if it does not come up they may have to adjust Ashleys chemo, we also have to check Ashleys platelets because if Ashleys platelets are to low she can not have motrin that day to help her fever when the doctors give Ashley the medicine for her bones. Ashley has been doing good with her platelets holding her own and not needing any transfusions. It has been awhile scence she has had to have a transfusion of platelets they do not want the platelets to be to low and cause her blood to thin if so they can not give Ashley motrin. ASHLEY NEEDS ALOT OF PRAYERS FROM EVERYONE PLEASE....Ashley will need to have this treatment of medicine through her port in her chest every 3 months they hope for a year but she should only have to be admitted only once to monitor the reaction and after that it will be an outpatient. We would like to ask everyone for a special prayer for Ashley. Thanks you so much we will keep everyone updated and God Bless....

On Tues. 3/9/10 we had to take Ashley back to the hospital her fever had went up and they ran more tests on her and we found out the next day Ashleys test results came back and it was a virus. 3/11/10 we took Ashley to the hospital for a Bone Density scan and we are waiting for the results, Ashleys Doctor sent the results to a specialist that will read it and decide what the next step is. Today is 3/14/10 Ashley feels alot better than the beginning of the week and can not wait to get back to school tomorrow Ashley still has a cough but the Doctor said it will take awhile for the cough to go away. Ashley has to get blood counts this week to keep a eye on her immune system and than Ashley returns to Columbus 3/26/10 she will recieve a spinal tap with chemo in the spine and chemo through her port and we will find out what they want to do about the bone density results. Please keep Ashley in your prayers, we will keep everyone updated... God Bless...

Ashley went back to Columbus on 2/26/10 Ashley got chemo Ashleys back has been bothering her on and off it might hurt for awhile and than feel better so the doctor said we should do an xray of her back, Ashleys doctor said a side effect from some medicines she is recieving may cause some of the bones to thin out. We went and had xrays done and it showed that yes the bones are thinning due to medicines the doctor said she sees this with kids with leukemia and we need to have a bone density test done of all the bones in Ashleys body to see if there is any other bones that have been effected from the side effects of the medicine they said depending on the severity of the test results Ashley will have to have a pill she needs to start taking or an iv once a month or once every 3 months to strengthen and build Ashleys bones back up they said she has osteopenia which means mild thinning of the bone mass, less dense than normal. This Thurs. the 11th we come back here for the bone density test. Today we are back in the Hosptal on Sat. the 6th. We had to bring Ashley to the ER here at Nationwide Childrens in Columbus. Friday Ashley started to Cough and now this morning Ashley woke up with a fever we called the hospital talked to the cancer doctor on call the doctor said to get her to the hospital we have been here all day depending on how her blood counts are they may admit her or if counts are ok they may give her antibiotics and send her home. We are sitting here waiting for blood counts and some good news. We will keep everyone updated. We need alot of prayers for Ashley Thank you and God Bless.....

Ashley went back to columbus on Jan. 29th she had her chemo and everything went well. On Friday Jan. 22 we took Ashley to Nationwide in Columbus Ashley was having moments when things went blurry it would be a couple seconds and it her vision would come back Columbus ran some tests on her and they said when kids get chemo it can cause the eye to spasm just like we get muscle spasms and when the eye spasms it can cause a moment of blurriness so we have to keep an eye on Ashley to make sure it dont get any worse. Please keep Ashley in your prayers.... Ashleys big birthday is almost here she will be 7 years old on Feb. 19th Ashley is counting down the days....On Feb. 20th Ashley is having some of her friends from school over for a party to celebrate her birthday and Pixie the clown is coming over to clown around...We return to Columbus on Feb. 26th. for Chemo, we will keep everyone updated. God Bless everyone......

Ashley went back to Columbus Dec. 30th for a Spinal tap and Chemo in the spine and Chemo through her port this was a very long day for Ashley everything went well but the chemo always makes Ashley not feel very well for a good week and her body hurts all over. Ashley is doing much better now she loves school and all her friends. The Doctor said she would like Ashley to try and wait 4 weeks to come back as long as everything is going well and she feels OK. We have to return Jan. 29th for Chemo, blood counts and to see the doctor. Guess what Ashleys Birthday is coming up February 19th she will be 7 years old she is so excited she is having a Birthday Party with alot of her friends from school Ashley is having a Hannah Montana Party. We want to Thank everyone for all there prayers Ashley has been going through alot in the last 2 years fighting Leukemia and she has been such a great fighter through all of this and all your prayers have been a blessing. We will keep everyone updated. Thank You and God Bless.....

Went back to Columbus got blood counts and 2nd series of the h1n1 shot. Everything went well. We have to return on the 30th for chemo and a spinal tap with chemo. On Sunday Dec. 20th Ashley spiked a fever and we had to rush to Columbus were they did blood counts and gave her fluids and started an antibiotics through her port. They decided to send Ashley home with and antibiotic and keep an eye on her. She started to feel better Monday her fever was gone. Later a Cold started. Today she is doing much better. Ashley had so much fun on Christmas she recieved lots of nice things from Santa. Christmas Eve. we made cookies for Santa they were very yummy. We would like to wish everyone a Happy New Year and please say a prayer for Ashley and we will keep everyone updated. God Bless....

We went back to columbus today for Chemo and Ashleys blood counts, everything went well and we have to return Dec. 18th for blood counts and for ashley to get her second shot of the h1n1. If you are under the age of 9 you have to get a half dose and wait 4 weeks and get the other half. Ashley is so excited about Christmas coming up she is counting down the days. Ashley has exciting news she pulled 2 of her teeth and guess what the tooth fairy came yaaa. It is so cute we were all singing all I want for Christmas is my 2 front teeth, Ashleys 1 tooth came out and than a week later she pulled the one right beside it and now beside that one she has another one loose, she is so excited...We want to Wish everyone a Merry Christmas and be careful the snow will be flying soon until the next update take care and God Bless....

We went back to Columbus Nationwide Hosp. today the nurses had alot of problems with Ashleys port that is in her chest they accessed her port and they could flush it but could not draw back blood to do blood counts and give Ashley Chemo so Ashley had to have a CT scan to see if her port was leaking or positioned wrong so the doctors ran contrast dyes through Ashleys port and there were no leaks and the port was postioned ok what alot of times happens a film covers the central line that runs to the heart and you can flush it but when you pull back for a blood return the film caps it off so they have to run a medicine through and let it sit for an hour than try again most of the time the medicine breaks down the film and than it is ok. If alot of people dont understand what the port is in Ashleys chest I will explain on the chest wall under Ashleys skin they attached a device that every time we go in the doctors and nurses access it there is an outside piece with a needle that goes into the device in the chest you have to have it right on its almost like a earring you have to put the post into the hole to put a earring on this outside port with the needle has to fit right into the port in Ashleys chest you can miss the hole so the nurses have to be careful the port in the chest has a wire like a line to an IV and that line runs up in the side of her neck and than from there it loops around runs down into Ashleys main artery in the heart. Ashley always gets her Chemo and the nurses draws Ashleys blood through the port and also called central line to the heart, if Ashley does not have to have chemo that day and its only counts Ashley prefers to have a blood draw with stick in the finger. After a long day the medicine broke the film and allowed the nurses to draw back blood. Ashley than was allowed to get her Chemo. Ashley has a little of a sore throat so the hospital did a throat culture for strep and it came back normal so we need to keep a close eye that she does not spike a fever. Please Pray for Ashley.. We do have to return to the hospital Nov. 20th for blood counts. We will keep everyone posted. Thank you for everyones prayers and God Bless everyone ...

Friday Ashley went to Columbus for her scheduled spinal tap and chemo. The day started early trying to get it done early because the doctor wanted to try to keep her from getting sick all weekend (a problem she has had the last few times). I have seen her get nervous and a little scared before but I think this is one of those time she was really in fear because she knew what the next few days were going to be like. But the doctor made the right call and she never got sick. The only problem she had this time I dont think we can ever get away from and thats the pain in her back and the side effects from the drugs making her body tired and achey. Even in her fear she didnt give any trouble and was a trooper. She dint make to school Monday or Tuesday but she is planning to go back on Wednesday providing that she feels up to it. I would like to thank her teacher Mrs. Clum and everyone at the school for being so good to her and looking out for her. They all have such an important job looking after all those kids.